RareGuru donates 10% of net proceeds to charitable organizations making a difference in the rare disease community. RareGuru users can designate their favorite charity when they download and sign up for the app. Here a select few of these exceptional organizations:
High Risk Hope provides support, encouragement, information, and resources to women and families who are experiencing a high risk pregnancy resulting in hospital bed rest, potential premature birth, and neonatal intensive care after delivery.
The Ehlers-Danlos Society is a global community of individuals, caregivers, healthcare professionals, and supporters, dedicated to saving and improving the lives of those affected by the Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD), and related conditions.
AARDA is dedicated to the eradication of autoimmune diseases and the alleviation of suffering and the socioeconomic impact of autoimmunity through fostering and facilitating collaboration in the areas of education, public awareness, research, and patient services in an effective, ethical and efficient manner.
Dysautonomia International is a non-profit that seeks to improve the lives of individuals living with autonomic nervous system disorders through research, physician education, public awareness and patient empowerment programs.
Our mission is to improve the quality of life for all people affected by lupus through programs of research, education, support and advocacy. We are focused on achieving the following disease-specific outcomes: reduce time to diagnosis, ensure people with lupus have an arsenal of safe and effective treatments, and expand direct services and increase access to treatment.
The Zebra Network works to increase awareness, education, advocacy and support for patients with Ehlers-Danlos Syndrome.