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Media Kit

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In the News

10 News
On the Road with Bobby Lewis

May 4, 2020

Claire couldn’t find anyone else in her area with the disease, so she decided to start an online community where people facing similar medical situations could congregate and share treatment ideas and support. The family started working on the RareGuru app in September and launched it last week.

Global Genes
Daniel Levine In Rare Form

May 8, 2020

“It’s inspiring to see my family and me have this idea and go through with it instead of having it and saying, ‘It’s a good idea and maybe we’ll do something in the future and never get to it,” said Claire. “For the hopefully thousands of people it reaches, I hope it can help them.”

Read the full article here.

People Using the App

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