There are 400 million people living with 7,000 rare diseases, disorders, and syndromes in 195 countries.

RareGuru is the one App that connects them all.






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In The News

Tampa teen creates app to connect people fighting rare diseases. WTSP 10 News

Claire Barrow started RareGuru after she, her mother and grandmother were all diagnosed with a rare bone disease in summer 2019. Read full article

App Helps Rare Disease Patients Find Others with the Same Condition. Global Genes

“It’s inspiring to see my family and me have this idea and go through with it instead of having it and saying, ‘It’s a good idea and maybe we’ll do something in the future and never get to it,” said Claire. “For the hopefully thousands of people it reaches, I hope it can help them.” Read full article

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