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RareGuru Library

The Library will return soon

Due to changes in how some sources provided data, we've had to rethink how the Library is sourced and presented. We'll be providing new details soons. Thank you.

Infographic for RareGuru: over 95% of rare diseases are without an FDA-approved treatment; A disease is defined as rare in the US when it affects fewer than 200,000 Americans at any given time; 150 rare diseases affect around 80% of the rare disease population; There may be as many as 7,000 rare diseases; There are more than 500 types of rare cancers; Many rare diseases result in premature deaths of infants and yound children, or are fatal in early childhood; It's estimated that 25-30 million Americans (almost 1 in 10) have a rare disease. Most rare diseases are genetic of have a genetic component.
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