By becoming a valued member of the RareGuru Community, you agree to respect and follow the guidelines outlined below.
RareGuru is a place where patients, caregivers, parents, and teens living with a rare disease, disorder, or syndrome can connect and support one other. As experts or gurus of their diagnosis, RareGuru users ask questions, share information, and celebrate wellness together. Please share your knowledge and experiences without trying to give medical advice. Complete your symptom tracker and keep your profile up-to-date with your current conditions, treatments, doctors, and medications, to track your health over time and share your experiences with others.
The RareGuru Community is diverse, and every human aged 13 and older are welcome to join. RareGuru will not tolerate discrimination, racism, or hate speech toward any individual or group of individuals. Every user, regardless of your race, gender, sexual orientation, ethnicity, citizenship, religious beliefs, diagnosis, or disabilities is an equally valued member of this community.
RareGuru users understandably have strong medical opinions on their diagnosis and treatment. However, we caution users to contact their healthcare providers before implementing medical advice given by other users. Information shared between users is not endorsed or approved by RareGuru.