There are 400 million people living with 7,000 rare diseases, disorders, and syndromes in 195 countries.
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My Constant Insomnia Turned Out to Be a Symptom of a Rare Disorder Called Hypophosphatasia
"Rare Guru encourages people to “become the patient zero” for their own disease, disorder, or syndrome. Patients can connect with other people with similar symptoms or diagnoses through the app, and caregivers can also get support." Read full article on Health.com.
App Helps Rare Disease Patients Find Others with the Same Condition. Global Genes.
“It’s inspiring to see my family and me have this idea and go through with it instead of having it and saying, ‘It’s a good idea and maybe we’ll do something in the future and never get to it,” said Claire. “For the hopefully thousands of people it reaches, I hope it can help them.” Read full article on GlobalGenes.org.
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