Carpenter syndrome

Are certain behavioral characteristics associated with Carpenter syndrome?

Children who have syndromic craniosynostosis are at risk for developing behavioral and emotional problems. However, we are unaware of studies regarding behavioral characteristics of people with Carpenter syndrome specifically. It has been reported that people with craniosynostosis in general may continue to have cognitive, psychological, speech, and behavioral problems, even after surgery that allows for normal cranial growth and development. Children with craniofacial abnormalities may have stigmatizing conditions such as speech defects and facial differences, which are reportedly associated with negative psychosocial outcomes such as poor psychological adjustment.

Last updated on 05-01-20

Name: FACES: The National Craniofacial Association PO Box 11082
Chattanooga, TN, 37401, United States
Phone: 423-266-1632 Toll Free: 800-332-2373 Email: faces@faces-cranio.org Url: http://www.faces-cranio.org/
Name: Children's Craniofacial Association 13140 Coit Road Suite 517
Dallas, TX, 75240 , United States
Phone: +1-214-570-9099 Toll Free: 1-800-535-3643 Fax : +1-214-570-8811 Email: contactCCA@ccakids.com Url: https://ccakids.org/
Name: World Craniofacial Foundation P.O. Box 515838
Dallas, TX, 75251-5838, United States
Phone: 972-566-6669 Toll Free: 800-533-3315 Fax : 972-566-3850 Email: info@worldcf.org Url: http://www.worldcf.org/
Name: National Institute of Dental and Craniofacial Research Building 31, Room 2C39 31 Center Drive, MSC 2290
Bethesda, MD, 20892,
Phone: 301-496-4261 Toll Free: 866-232-4528 Email: nidcrinfo@mail.nih.gov Url: http://www.nidcr.nih.gov/

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