Benign essential blepharospasm

Approximately how many people in the United States have benign essential blepharospasm (BEB)?

It is estimated that there are at least 50,000 cases of BEB in the United States, with up to 2000 new cases diagnosed annually. It is estimated that 5 in 100,000 individuals have BEB.

Last updated on 05-01-20

Name: Dystonia Medical Research Foundation 1 East Wacker Drive Suite 1730
Chicago, IL, 60601-1905, United States
Phone: +1-312-755-0198 Toll Free: 1-0800-377-3978 Fax : +1-312-803-0138 Email: Url:
Name: Benign Essential Blepharospasm Research Foundation 637 North 7th Street, Suite 102 PO Box 12468
Beaumont, TX, 77726-2468, United States
Phone: 409-832-0788 Fax : 409-832-0890 Email: Url:
Name: Dystonia Society 89 Albert Embankment
London, SE1 7TP, United Kingdom
Phone: 020 7793 3651 (general enquiries) Email: Url:

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The RareGuru disease database is regularly updated using data generously provided by GARD, the United States Genetic and Rare Disease Information Center.

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