Chiari malformation

Name: American Syringomyelia & Chiari Alliance Project ASAP PO Box 1586
Longview, TX, 75606-1586 , United States
Phone: 903-236-7079 Toll Free: 800-272-7282 Fax : 903-757-7456 Email: Url:
Name: Bobby Jones Chiari & Syringomyelia Foundation Bobby Jones CSF c/o Dorothy Poppe 29 Crest Loop
Staten Island, NY, 10312, United States
Phone: +1-718-966-2593 Fax : +1-718-966-2593 (please call first) Email: Url:
Name: Worldwide Syringomyelia & Chiari Task Force Inc. PO Box 491975
Lawrenceville, GA, 30049,
Phone: +1-914-510-CURE (2873) Email: Url:

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The RareGuru disease database is regularly updated using data generously provided by GARD, the United States Genetic and Rare Disease Information Center.

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