Benign mesonephroma

While we are not aware of a support group specifically for women with a benign mesonephroma (wolffian tumor), you may find the following online networks to be helpful. You can register with these sites to search for other patients with a wolffian tumor and to allow other patients to find you.

The Genetic Alliance has partnered with Inspire.com to launch an online community for people with rare diseases called the Rare Disease & Genetic Conditions Support Community. This community connects medical patients, family members, caregivers, and professionals. Click on Rare Disease & Genetic Conditions Support Community to learn more.

RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders. Click on RareShare to learn more.

In addition, the following group may be able to provide you with additional information on wolffian tumors.

Urology Care Foundation
1000 Corporate Boulevard
Linthicum, Maryland 21090
Telephone: (410) 689-3700
Fax: (410) 689-3998
Toll free within the United States: (800) 828-7866
Email: info@urologycarefoundation.org
Web site: http://www.urologyhealth.org/index.cfm

The National Institutes of Health, through the National Library of Medicine, developed ClinicalTrials.gov to provide patients, family members, and members of the public with current information on clinical research studies. No studies involving wolffian tumors are listed at this time, but check this site often for updates. To search for a study, use 'wolffian tumor' as your search term.

You can also contact the Patient Recruitment and Public Liaison (PRPL) Office at the National Institutes of Health (NIH). We recommend calling the toll-free number listed below to speak with a specialist, who can help you determine if you are eligible for any clinical trials.

Patient Recruitment and Public Liaison Office (PRPL)
NIH Clinical Center
Bethesda, Maryland 20892-2655
Toll-free: 800-411-1222
Fax: 301-480-9793
Email: prpl@mail.cc.nih.gov
Web site: http://clinicalcenter.nih.gov/

ClinicalTrials.gov provides a helpful guide for information about participating in a clinical trial. Resources for travel and lodging assistance are listed on the National Center for Advancing Translational Sciences Office of Rare Diseases Research (NCATS-ORDR) website, part of the National Institutes of Health (NIH).

Benign mesonephroma (Wolffian tumors or Wolffian duct adenomas) are rare tumors located anywhere along the length between the ovary and vagina in sites of remnant wolffian ducts. Wolffian ducts are structures in a developing embryo that get incorporated into the reproductive system in males and degenerate in females. Wolffian tumors are thought to have a low potential to become cancerous and tend to range from 0.8 to 25 centimeters in size. Surgery is the recommended treatment. In a small number of cases, recurrences or malignancy have been been reported. Close follow-up is advised.