Urea cycle disorders

Patient Registry

RDCRN - Urea Cycle Disorders Consortium Registry

The Urea Cycle Disorders Consortium is a team of doctors, nurses, research coordinators, and research labs throughout the US, working together to improve the lives of people with Urea Cycle Disorders. The Urea Cycle Disorders Consortium maintains a registry for patients who wish to be contacted about clinical research opportunities.

For more information on the registry see: http://rarediseasesnetwork.epi.usf.edu/ucdc/takeaction/index.htm

Last updated on 04-27-20

Name: National Urea Cycle Disorders Foundation 75 South Grand Avenue
Pasadena, CA, 91105, United States
Phone: +1-626-578-0833 Toll Free: 800-38-NUDCF (386-8233) Email: info@nucdf.org Url: http://www.nucdf.org

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The RareGuru disease database is regularly updated using data generously provided by GARD, the United States Genetic and Rare Disease Information Center.

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