Refsum disease, infantile form

Name: United Leukodystrophy Foundation (ULF) 224 North Second Street Suite 2
DeKalb, IL, 60115 , United States
Phone: 815-748-3211 Toll Free: 800-728-5483 Fax : 815-748-0844 Email: office@ulf.org Url: http://www.ulf.org/
Name: Global Foundation for Peroxisomal Disorders 5147 South Harvard Avenue Suite 181
Tulsa, OK, 74135, United States
Phone: 347-470-4373 Fax : 918-516-0227 Email: contactus@thegfpd.org Url: http://www.thegfpd.org

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The RareGuru disease database is regularly updated using data generously provided by GARD, the United States Genetic and Rare Disease Information Center.

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