Rasmussen encephalitis

What causes Rasmussen encephalitis?

The underlying cause of Rasmussen encephalitis remains unknown. Current evidence suggests that autoimmune processes are responsible for the damage to the brain cells. In most patients, the trigger of the abnormal immune response is unclear, although it may follow an otherwise minor bacterial or viral infection or head injury. Rasmussen encephalitis is a sporadic disease. It has not been associated with any particular environments or populations and cannot be caught from others. Research is underway to help better understand the underlying cause.

Last updated on 05-01-20

How might Rasmussen encephalitis be treated?

Anti-epileptic drugs are usually not effective in controlling the seizures associated with Rasmussen encephalitis. Recent studies have shown some success with treatments that suppress or modulate the immune system, in particular those that use corticosteroids, intravenous immunoglobulin, or tacrolimus. Surgery to control seizures may be performed in later stages of the disease when neurological deficits stabilize. Surgical procedures, such as functional hemispherectomy (removal of half of the brain) and hemispherotomy (a surgical procedure for hemispheric disconnection), may reduce the frequency of seizures and also improve behavior and cognitive abilities.

Last updated on 05-01-20

Where To Start

Rasmussen - resources

The Encephalitis Society is a UK based charity set up by people affected by encephalitis in 1994. This group provides information about Rasmussen encephalitis. Click on the link to view information related to this topic.

Last updated on 04-27-20

Name: Encephalitis Society 32 Castlegate Malton, North Yorkshire YO17 7DT
United Kingdom
Phone: +44 (0)1653 699599 Email: support@encephalitis.info Url: http://www.encephalitis.info/ Social media: Twitter: @encephalitis Facebook: /encephalitissociety
Name: The Hemispherectomy Foundation PO Box 1239
Aledo, TX, 76008, United States
Phone: 817-307-9880 Email: info@hemifoundation.org Url: http://hemifoundation.homestead.com/welcome.html
Name: RE Children's Project 79 Christie Hill RD
Darien, CT, 06820, United States
Phone: 917-971-2977 Email: swohlberg@rechildrens.com Url: https://www.facebook.com/REChildrensProject/

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