Pheochromocytoma-islet cell tumor syndrome

Other Names: Pheochromocytoma and islet cell tumor of the pancreas See more

Categories: Hereditary Cancer Syndromes

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Description

We don’t have a description for this disease, disorder, or syndrome yet.

Source: GARD Last updated on 05-01-20

Symptoms

Symptoms and their Known Frequencies

We're currently performing maintenance on our symptoms information from GARD. Please check back at a later time for updates.

Patient Registry

Children's Tumor Foundation

The Children's Tumor Foundation, which advocates for research into neurofibromatosis (NF), launched an NF Registry in 2012. The purpose of this registry is to find people who may be eligible for clinical trials or other research studies being conducted in the field of neurofibromatosis and to determine the commonality of specific NF characteristics.

Last updated on 04-27-20

Name: Nerve Tumours UK 1st Floor 44 Coombe Lane
London, SW20 0LA, United Kingdom Phone: 44(0)208 439 1234 Toll Free: 07939 046 030 (Helpline) Email: info@nervetumours.org.uk Url: https://nervetumours.org.uk

Name: Children's Tumor Foundation CTF 120 Wall Street, 16th floor
New York, NY, 10005-3904, United States Phone: +1-212-344-6633 Toll Free: 1-800-323-7938 Fax : +1-212-747-0004 Email: info@ctf.org Url: https://www.ctf.org/

Name: North American Neuroendocrine Tumor Society NANETS 136 Everett Road
Albany, NY, 12205, United States Phone: (650) 762-6387 Email: staff@nanets.net Url: https://nanets.net/

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Pheochromocytoma-islet cell tumor syndrome

Table of Contents

Description

Symptoms

Symptoms and their Known Frequencies

Patient Registry

Children's Tumor Foundation

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Pheochromocytoma-islet cell tumor syndrome

Table of Contents

Description

Symptoms

Symptoms and their Known Frequencies

Resources

Patient Registry

Children's Tumor Foundation

Organizations

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