Pheochromocytoma-islet cell tumor syndrome

Patient Registry

Children's Tumor Foundation

The Children's Tumor Foundation, which advocates for research into neurofibromatosis (NF), launched an NF Registry in 2012. The purpose of this registry is to find people who may be eligible for clinical trials or other research studies being conducted in the field of neurofibromatosis and to determine the commonality of specific NF characteristics.

Last updated on 04-27-20

Name: Nerve Tumours UK 1st Floor 44 Coombe Lane
London, SW20 0LA, United Kingdom
Phone: 44(0)208 439 1234 Toll Free: 07939 046 030 (Helpline) Email: Url:
Name: Children's Tumor Foundation CTF 120 Wall Street, 16th floor
New York, NY, 10005-3904, United States
Phone: +1-212-344-6633 Toll Free: 1-800-323-7938 Fax : +1-212-747-0004 Email: Url:
Name: North American Neuroendocrine Tumor Society NANETS 136 Everett Road
Albany, NY, 12205, United States
Phone: (650) 762-6387 Email: Url:

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