Clinical Research Resources

National PKU News

To help you stay up-to-date on ongoing PKU research visit the PKU News **** Web site. Click on the link to view research information.

Last updated on 04-27-20

Management Guidelines

Free full text - Management guidelines - Wappner, et al. PKU

Last updated on 04-27-20

Management guideline - AAP PKU

National Institutes of Health Consensus Development Panel. National Institutes of Health Consensus Development Conference Statement: Phenylketonuria: Screening and Management October 16-18, 2000. Pediatrics. 2001;108:972-982.

Last updated on 04-27-20

Children’s PKU Network

Women with PKU who want to become pregnant can obtain a maternal express packet of information from the Children's PKU Network - free of charge - designed to assist women with their diet.

Last updated on 04-27-20

Name: Children’s PKU Network 3306 Burmann Rd
Encinitas, CA, 92024, United States
Phone: 858-756-0079 Email: Url:
Name: National PKU News PO Box 43552
Montclair, NJ, 07043, United States
Phone: 973-619-9160 Email: Url:
Name: March of Dimes 1275 Mamaroneck Avenue
White Plains, NY, 10605, United States
Phone: 914-997-4488 Toll Free: 888-663-4637 Fax : 914-997-4763 Email: Url:
Name: National PKU Alliance PO Box 501
Tomahawk, WI, 54487,
Email: Url:

Note, these links are external searches against the National Laboratory of Medicine's drug database. You may need to adjust the search if there are no results found.

Drug Name Generic Name
Palynziq pegvaliase-pqpz

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