Pelvic lipomatosis

Is weight-loss helpful in the management of pelvic lipomatosis?

To date, weight-loss has not been shown to be effective in managing pelvic lipomatosis. Treatment options for pelvic lipomatosis may include watchful waiting or surgery. Unfortunately, less invasive treatments such as antibiotics, steroids, and radiation therapy are not helpful.

Currently there are no well established treatment guidelines for pelvic lipomatosis. It can likewise be difficult to find doctors who have clinical experience with this rare condition. The following organization has a medical advisory board, physician locator services, and patient networks which may help you find doctors who are experienced in treating pelvic lipomatosis. While the group does not offer information on pelvic lipomatosis currently, they do advocate for all people with rare fat disorders.

Fat Disorders Research Society
2305 Robincrest Ln
Glenview, IL 60025

Last updated on 05-01-20

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The RareGuru disease database is regularly updated using data generously provided by GARD, the United States Genetic and Rare Disease Information Center.

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