Oculocutaneous albinism

What treatments are available for oculocutaneous albinism?

Individuals with oculocutaneous albinism should have annual skin examinations to check for skin damage or skin cancer and annual eye examination to check vision. Affected individuals should cover their skin from sun exposure by using sunscreen and wearing protective clothing such as long-sleeve shirts, long pants, and hats with wide brims. Glasses may be worn to reduce sensitivity to bright light or to improve vision. Additional therapies or surgery may be used to treat crossed eyes (strabismus) or rapid eye movements (nystagmus).

Last updated on 05-01-20

Name: National Alliance for Eye and Vision Research (NAEVR) 1801 Rockville Pike, Suite 400
Rockville, MD, 20852, United States
Phone: 240-221-2905 Fax : 240-221-0370 Email: jamesj@eyeresearch.org Url: http://www.eyeresearch.org/
Name: The National Organization of Albinism and Hypopigmentation (NOAH) PO Box 959
East Hampstead, NH, 03826-0959 , United States
Phone: 603-887-2310 Toll Free: 800-473-2310; Email: noah@albinism.org Url: http://www.albinism.org
Name: Vision of Children Foundation (VOC) 12671 High Bluff Drive, Suite 300
San Diego, CA, 92130 , United States
Phone: 858-799-0810 Fax : 858-794-2348 Email: cdenofrio@visionofchildren.org Url: http://www.visionofchildren.org

Connect with other users with Oculocutaneous albinism on the RareGuru app

Do you have information about a disease, disorder, or syndrome? Want to suggest a symptom?
Please send suggestions to RareGuru!

The RareGuru disease database is regularly updated using data generously provided by GARD, the United States Genetic and Rare Disease Information Center.

People Using the App

Join the RareGuru Community

To connect, share, empower and heal today.

People Using the App