Niemann-Pick disease type C1

Name: National Tay-Sachs and Allied Diseases Association 2001 Beacon Street Suite 204
Brighton, MA, 02135, United States
Phone: 617-277-4463 Toll Free: 800-90-NTSAD (906-8723) Fax : 617-277-0134 Email: info@ntsad.org Url: https://www.ntsad.org/
Name: Metabolic Support UK 5 Hilliards Court Sandpiper Way
Chester Business Park
Chester, CH4 9QP, United Kingdom
Phone: 0845 241 2173 Toll Free: 0800 652 3181 Email: https://www.metabolicsupportuk.org/contact-us Url: https://www.metabolicsupportuk.org
Name: Hide and Seek Foundation for Lysosomal Storage Disease Research 6475 East Pacific Coast Highway Suite 466
Long Beach, CA, 90803 , United States
Toll Free: (844) 762-7672 Email: info@hideandseek.org Url: https://hideandseek.org
Name: National Niemann-Pick Disease Foundation, Inc. P.O. Box 49 401 Madison Avenue, Suite B
Ft. Atkinson, WI, 53538, United States
Phone: 920-563-0930 Toll Free: 877-CURE-NPC (287-3672) Fax : 920-563-0931 Email: nnpdf@nnpdf.org Url: http://www.nnpdf.org
Name: Ara Parseghian Medical Research Foundation 4729 E Sunrise Dr. #327
Tucson, AZ, 85718-4535,
Phone: 520-577-5106 Fax : 520-577-5212 Email: promano@parseghian.org Url: http://www.parseghian.org
Name: Firefly Fund P.O. BOX 92616
Austin, TX, 78709,
Phone: (512) 551-3299 Email: info@firefly.fund Url: https://fireflyfund.org/

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