Don’t fight Mycosis fungoides alone.Find your community on the free RareGuru App.
Mycosis fungoides is a disease in which T-cell lymphocytes (a type of white blood cell) become malignant (cancerous) and affect the skin. This condition is one of the most common types of T-cell lymphoma. Mycosis fungoides is characterized by a scaly, red rash that develops on the skin, particularly on areas that are not usually exposed to the sun. The rash may last for months or years without causing any symptoms. Over time, a thin, reddened, eczema-like rash may develop, followed by thickened, red patches of skin. Finally, tumors form which may develop into ulcers and become infected. Mycosis fungoides is difficult to cure. Treatment is usually palliative, with the intention of relieving symptoms and improving the quality of life.
Source: GARD Last updated on 05-01-20
Mycosis fungoides (MF) has an indolent (low-grade) clinical course, which
means that it may persist in one stage, or may slowly progress to another
stage (from patches to thicker plaques and eventually to tumors) over years or
sometimes decades. The condition is incurable in most affected
individuals, with the exception of those with stage IA
The prognosis for each individual varies and is related to the disease
at the time of diagnosis, the type and extent of skin lesions, and whether the
disease is present in other areas of the body (extracutaneous).
Studies regarding the survival outcomes and prognosis have generally found that:
Other factors that may be associated with reduced survival and increased risk of disease progression include increased age, male sex, and increased lactate dehydrogenase (LDH).
Last updated on 05-01-20
Do you have information about a disease, disorder, or syndrome? Want to suggest a symptom?
Please send suggestions to RareGuru!