Multiple sulfatase deficiency

Patient Registry

MSD Patient Registry

The MSD Patient Registry supports research for Multiple sulfatase deficiency by collecting information about patients with this diagnosis. You can join the registry to share your information with researchers and receive updates about participating in new research studies. Learn more about registries.

Last updated on 04-27-20

Name: Society for Mucopolysaccharide (MPS) Diseases MPS House Repton Place White Lion Road Amersham Buckinghamshire
HP7 9LP
United Kingdom
Phone: (+44) 0345 389 9901 Email: mps@mpssociety.co.uk Url: http://www.mpssociety.co.uk
Name: MSD Action Foundation 35 Grattan Lodge Balgriffin
Dublin 13, Ireland
Email: info@msdactionfoundation.org Url: http://www.savingdylan.com/
Name: MSD Patient Registry
Name: United MSD Foundation 2112 Bienville Blvd. Suite B2
Ocean Springs, MS, 39564,
Email: info@unitedmsdfoundation.org Url: http://curemsd.org/

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