Multifocal lymphangioendotheliomatosis with thrombocytopenia

Patient Registry

Registry for Vascular Anomalies Associated With Coagulopathy

The Registry for Vascular Anomalies Associated With Coagulopathy aims to learn more about multifocal lymphangioendotheliomatosis with thrombocytopenia (MLT). This study is collecting detailed clinical data on the distribution of disease, disease severity, and complications. This data will be used to create diagnostic criteria and an evaluation protocol for infants with this disease.

Last updated on 04-27-20

Where To Start

Children's Hospital of Wisconsin

The Children's Hospital of Wisconsin provides information about Multifocal lymphangioendotheliomatosis with thrombocytopenia.

Last updated on 04-27-20

Name: Platelet Disorder Support Association 8751 Brecksville Road Suite 150
Cleveland, OH, 44141, United States
Phone: 440-746-9003 Toll Free: 87-PLATELET (1-877-528-3538) Fax : 844-270-1277 Email: pdsa@pdsa.org Url: http://www.pdsa.org/
Name: National Organization of Vascular Anomalies PO Box 38216
Greensboro, NC, 27438-8216, United States
Email: khall@novanews.org Url: http://www.novanews.org

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