Androgen insensitivity syndrome

How does androgen insensitivty syndrome affect gender identity?

There are different forms of androgen insensitivity.

Complete androgen insensitivity syndrome occurs when the body cannot respond at all to certain male sex hormones (called androgens). People with this form of the condition have female sex characteristics, but do not have a uterus. Without a uterus, they do not menstruate and are unable to carry a pregnancy or have their own biological child (infertile). They are typically raised as females and have a female gender identity.

The partial and mild forms of androgen insensitivity syndrome occur when the body is able to partially respond to androgens. People with partial androgen insensitivity (also called Reifenstein syndrome) can have normal female sex characteristics, both male and female sex characteristics, or normal male sex characteristics. They may be raised as males or as females, and may have a male or a female gender identity.

Last updated on 05-01-20

Name: AIS-DSD Support Group P.O. Box 2148
Duncan, OK, 75354-2148, United States
Email: Url:
Name: Resolve: The National Infertility Association 7918 Jones Branch Drive, Suite 300
McLean, VA, 22102, United States
Phone: 703-556-7172 Fax : 703-506-3266 Email: Url:
Name: Accord Alliance 531 Route 22 East #244
Whitehouse Station, NJ, 08889 , United States
Phone: 908-349-0534 Fax : 801-349-0534 Email: Url:
Name: Androgen Insensitivity Syndrome Support Group UK Url:

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The RareGuru disease database is regularly updated using data generously provided by GARD, the United States Genetic and Rare Disease Information Center.

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