Melorheostosis

How might melorheostosis be treated?

There is no standard treatment for melorheostosis, and options are individualized based on the specific symptoms and severity in each person. Management aims to relieve pain, correct deformity, and restore movement. Physical therapy is an essential part of management both for pain relief and maintaining or improving range of motion. Other management options include bisphosphonates, pain medications, spinal cord stimulation, nerve blocks, and sympathectomy. Surgical options vary from person to person depending on the bone(s) and tissues involved and the severity. In some cases, bone deformities recur after surgical treatment.

Last updated on 05-01-20

Social Networking Websites

Melorheostosis Patients & Friends

Last updated on 04-27-20

Name: Melorheostosis Association 410 East 50th Street
New York, NY, 10022,
Email: Kathleen@harpervision.com; gordyjm@yahoo.com Url: http://www.melorheostosis.com/

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The RareGuru disease database is regularly updated using data generously provided by GARD, the United States Genetic and Rare Disease Information Center.

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