Localized scleroderma

What is localized scleroderma?

Localized scleroderma is characterized by thickening of the skin from excessive collagen deposits. Collagen is a protein normally present in our skin that provides structural support. However, when too much collagen is made, the skin becomes stiff and hard. Localized types of scleroderma are those limited to the skin and related tissues and, in some cases, the muscle below. Internal organs are not affected by localized scleroderma, and localized scleroderma can never progress to the systemic form of the disease. Often, localized conditions improve or go away on their own over time, but the skin changes and damage that occur when the disease is active can be permanent. For some people, localized scleroderma is serious and disabling.

There are two generally recognized types of localized scleroderma: morphea and linear.

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Last updated on 05-01-20

How can I find journal articles on morphea?

PubMed lists journal articles that discuss morphea. Click on the link to go to PubMed and review citations to these articles.

Last updated on 05-01-20

How can I locate research for morphea?

ClinicalTrials.gov lists trials that are studying or have studied morphea. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.

You can also contact the Patient Recruitment and Public Liaison (PRPL) Office at the National Institutes of Health (NIH). We recommend calling the toll-free number listed below to speak with a specialist, who can help you determine if you are eligible for any clinical trials.

Patient Recruitment and Public Liaison Office
NIH Clinical Center
Bethesda, Maryland 20892-2655
Toll-free: 800-411-1222
Fax: 301-480-9793
Email:

prpl@mail.cc.nih.gov
Web site: http://clinicalcenter.nih.gov/

If you are interested in enrolling in a clinical trial, you can find helpful general information on clinical trials at the following ClinicalTrials.gov Web page.
http://clinicaltrials.gov/ct2/info/understand

A tutorial about clinical trials that can also help answer your questions can be found at the following link from the National Library of Medicine:
http://www.nlm.nih.gov/medlineplus/tutorials/cancerclinicaltrials/htm/lesson.htm

Resources on many charitable or special-fare flights to research and treatment sites and low-cost hospitality accommodations for outpatients and family members, as well as ambulance services, are listed on the Web site of the Office of Rare Diseases (ORD), part of the National Institutes of Health.
http://rarediseases.info.nih.gov/Resources.aspx?PageID=8

Last updated on 05-01-20

Who can I contact to learn more about morphea and other forms of localized scleroderma?

You can learn more about morphea and other forms of localized scleroderma by visiting the following link from the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS), part of NIH.
http://www.niams.nih.gov/hi/topics/scleroderma/scleroderma.htm#2

Additionally, NIAMS offers printed materials on scleroderma. We recommend calling the toll-free number below to request a copy of this information.

National Institute of Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse
National Institutes of Health
1 AMS Circle
Bethesda, Maryland 20892-3675
Toll free: 877-22-NIAMS
Telephone: 301-495-4484
TTY: 301-565-2966
Fax: 301-718-6366
Email: niamsinfo@mail.nih.gov
Web site: http://www.niams.nih.gov/hi/index.htm

More information on scleroderma can be found at the following link from MEDLINEplus, the National Library of Medicine Web site designed to help you research your health questions.
http://www.nlm.nih.gov/medlineplus/scleroderma.html

Last updated on 05-01-20

Name: Scleroderma Foundation 300 Rosewood Drive, Suite 105
Danvers, MA, 01923, United States
Phone: +1-978-463-5843 Toll Free: 1-800-722-4673 (HOPE) Fax : +1-978-463-5809 Email: sfinfo@scleroderma.org Url: https://www.scleroderma.org
Name: International Scleroderma Network (ISN) 7455 France Ave So #266
Edina, MN, 55435-4702 , United States
Phone: +1-952-831-3091 Toll Free: 1-800-564-7099 Email: isn@sclero.org Url: https://www.sclero.org/index.html
Name: Scleroderma Research Foundation 220 Montgomery Street, Suite 484
San Francisco, CA, 94104 , United States
Phone: +1-415-834-9444 Email: info@srfcure.org Url: https://srfcure.org/
Name: Scleroderma Society of Ontario 41 King William Street, Suite 202
Hamilton, ON, L8R 1A2, Canada
Phone: +1-905-544-0343 Toll Free: 1-888-776-7776 (Helpline) Email: info@sclerodermaontario.ca Url: https://www.sclerodermaontario.ca/
Name: Scleroderma & Raynaud's UK SRUK 18-20 Bride Lane
London, EC4Y 8EE, United Kingdom
Phone: 020 7000 1925 (Office) Toll Free: 0800 311 2756 (Helpline) Email: info@sruk.co.uk Url: https://www.sruk.co.uk

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