Glomus jugulare tumors

What causes a glomus jugulare tumor?

The exact cause of glomus jugulare tumors is unknown. Most glomus jugulare tumors develop by chance in individuals who have no family history of this condition. However, in some families, multiple relatives are affected by glomus jugulare tumors, which indicates there may be an inherited risk factor (genetic predisposition) that increases the chance of developing this disease. Changes (mutations) in the SDHD gene have been identified as an inherited risk factor in some glomus jugulare tumors.

Last updated on 05-01-20

How rare is glomus jugulare tumor?

It is estimated that one in 1.3 million people is affected by a glomus jugulare tumor each year.

The National Cancer Institute reports that 214 individuals were diagnosed with some type of paraganglioma, a group of tumor types that includes glomus jugulare tumors, in the years 2005 to 2009.

Last updated on 05-01-20

Name: The Pheo Para Alliance 9721 Whitley Park Place
Bethesda, MD, 20814, United States
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The RareGuru disease database is regularly updated using data generously provided by GARD, the United States Genetic and Rare Disease Information Center.

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