Ganglioglioma

Is any research being done on ganglioglioma?

To the best of our knowledge, there is only one research study being done for ganglioglioma. This study is examining the use of a particular kind of radiation therapy to treat brain tumors, including gangliogliomas, in children ages 1 to 25. More information about this study can be found at the website ClinicalTrials.gov.

Last updated on 05-01-20

What is a ganglioglioma?

A ganglioglioma is a rare type of brain tumor, accounting for approximately 1% of all brain tumors. Gangliogliomas occur when a single cell in the brain starts to divide into more cells, forming a tumor. This can occur when the cell randomly acquires changes (mutations) in genes that regulate how a cell divides. Most gangliogliomas grow slowly and are considered benign. However, up to 10% of gangliogliomas may grow more rapidly and become malignant, meaning the tumor affects the surrounding brain tissue. The main treatment for ganglioglioma is removal of the entire tumor during surgery. If the entire tumor is not removed, it has the potential to recur and may require additional surgery or treatments, such as radiation therapy or chemotherapy. Unfortunately, because gangliogliomas are quite rare, there is limited information to show that radiation therapy or chemotherapy are effective treatments for this condition.

Last updated on 05-01-20

Name: Brain Foundation P O Box 579 Crows Nest, NSW
1585 Suite 21 Regent House 37-43 Alexander Street Crows Nest, NSW 2065
Australia
Phone: 61 2 9437 5967 Fax : 61 2 9437 5978 Email: http://brainfoundation.org.au/contact Url: http://www.brainfoundation.org.au/
Name: American Brain Tumor Association 8550 W. Bryn Mawr Ave, Ste 550
Chicago, IL, 60631, United States
Phone: +1-773-577-8750 Toll Free: 1-800-886-2282 Fax : +1-773-577-8738 Email: info@abta.org Url: https://www.abta.org/
Name: National Brain Tumor Society 55 Chapel St., Suite 200
Newton, MA, 02458, United States
Phone: +1-617-924-9997 Fax : +1-617-924 -9998 Email: http://braintumor.org/our-mission/contact-us/ Url: http://braintumor.org/
Name: International Brain Tumour Alliance 10 Carrodus Street, Fraser, ACT, 2615
Australia
Email: chair@theibta.org Url: http://www.theibta.org/

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The RareGuru disease database is regularly updated using data generously provided by GARD, the United States Genetic and Rare Disease Information Center.

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