FG syndrome

What is the life expectancy for FG syndrome?

Serious complications of FG syndrome, such as heart defects, breathing complications, or gastrointestinal (GI) malformations, may shorten the lifespan of affected individuals. Long-term survival has been reported, and several individuals with FG syndrome 1 have survived beyond age 50.

Last updated on 05-01-20

How might FG syndrome be treated?

Treatment is aimed at addressing the individual symptoms present in each case. This often involves care by a team of providers which may include pediatricians, neurologists, cardiologists, surgeons, gastroenterologists, and psychologists. Early intervention and special education services should be initiated as soon as possible so that each child can reach his fullest potential.

GeneReviews provides a detailed list of management strategies.

Last updated on 05-01-20

Name: National Organization of Disorders of the Corpus Callosum PMB 363 18032-C Lemon Drive
Yorba Linda, CA, 92886, United States
Phone: +1-714-747-0063 Fax : +1-714-693-0808 Email: info@nodcc.org Url: https://nodcc.org/

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The RareGuru disease database is regularly updated using data generously provided by GARD, the United States Genetic and Rare Disease Information Center.

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