Adult neuronal ceroid lipofuscinosis

What is the long-term outlook for people with adult neuronal ceroid lipofuscinosis?

Unfortunately, the long-term outlook (prognosis) for people with adult neuronal ceroid lipofuscinosis is generally poor. The symptoms tend to become worse over time, resulting in a shortened life expectancy. Most sources state that a person with adult neuronal ceroid lipofuscinosis usually lives about 10 years after the symptoms begin.

Last updated on 05-01-20

Name: Batten Disease Support and Research Association BDSRA 2780 Airport Drive, Suite 342
Columbus, OH, 43219, United States
Toll Free: 1-800-448-4570 Fax : 1-866-648-8718 Email: https://bdsra.org/contact-us/ Url: https://bdsra.org/

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