Facioscapulohumeral muscular dystrophy

Does alcohol consumption speed the progression of facioscapulohumeral muscular dystrophy?

In our search we did not find information regarding alcohol consumption and facioscapulohumeral muscular dystrophy specifically. We recommend that you speak with your doctor before drinking alcohol.

According to the Muscular Dystrophy Association, moderate amounts of alcohol isn't harmful to most people with neuromuscular disease in general. However the effects of alcohol may magnify exisiting problems with movement, coordination, sleep, swallowing, and breathing. Alcohol should be consumed in a safe situation with others around. Also, be sure to think about any other conditions or medications that you are on and the effect alcohol may have on these.

Last updated on 05-01-20

Is stem cell therapy being used to treat people with facioscapulohumeral muscular dystrophy?

The Food and Drug Administration has not approved stem cell therapy for the treatment of facioscapulohumeral muscular dystrophy. Clinical trials are investigating the use of this therapy for treatment of other forms of muscular dystrophy. Visit clinicaltrials.gov to view these trials. In the United States private companies have infused patients with a variety of conditions with stem cells. FDA cautions consumers to make sure that any stem cell treatment they are considering has been approved by FDA or is being studied under a clinical investigation that has been submitted to and allowed to proceed by FDA. Click here to learn vist the FDA Web site and learn more about stem cell treatments in the United States.

The Muscular Dystrophy Association provides information regarding the state of stem cell therapies for treatment of muscular dystrophies on their Web site at the following link.

Last updated on 05-01-20

Is exercise recommended for people with facioscapulohumeral muscular dystrophy?

Yes. Exercise is generally recommended for people with facioscapulohumeral muscular dystrophy (FSHD). People with FSHD may benefit from aerobic exercise at least three times a week for 30 minutes at an intensity to reach their age- adjusted target heart rate. Visit the American Heart Association Web site to learn how to calculate your target heart rate. If aerobic exercise is not possible, people with FSHD may benefit from moderate intensity resistance training.

Last updated on 05-01-20

Are there medications to slow the progression of facioscapulohumeral muscular dystrophy?

No. Currently there are no medications that have been shown to slow the progression of facioscapulohumeral muscular dystrophy (FSHD).

Last updated on 05-01-20

Name: FSH Society, Inc. 450 Bedford Street
Lexington, MA, 02420, United States
Phone: 617-669-1706 Email: info@fshsociety.org Url: http://www.fshsociety.org
Name: Muscular Dystrophy Association MDA 222 S Riverside Plaza Suite 1500
Chicago, IL, 60606, United States
Toll Free: 1-833-275-6321 (Helpline) Email: resourcecenter@mdausa.org Url: https://www.mda.org
Name: Friends of FSH Research 217 19th Place
Kirkland, WA, 98033,
Phone: 425-827-8954 Email: connect@fshfriends.org Url: http://www.fshfriends.org/
Darras BT. Facioscapulohumeral muscular dystrophy UpToDate. Waltham, MA. 2014; Reference Link

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