Ehlers-Danlos syndrome, dysfibronectinemic type

Name: Ehlers-Danlos Society PO Box 87463
Montgomery Village, MD, 20886, United States
Phone: 410-670-7577 Email: info@ehlers-danlos.com Url: https://www.ehlers-danlos.com/eds-helpline/ https://www.ehlers-danlos.com/
Name: Ehlers-Danlos Support UK PO Box 748
Borehamwood , WD6 9HU, United Kingdom
Phone: 0208 736 5604 Toll Free: 0800 907 8518 (in the UK) Email: director@ehlers-danlos.org Url: https://www.ehlers-danlos.org/
Name: The Zebra Network 1122 Kenilworth Drive Suite 307
Towson, MD, 21204,
Phone: 410-825-0995 Email: victoria@thezebranetwork.org Url: http://thezebranetwork.org/
Name: The Ehlers-Danlos Society – Europe Office Office 7 35-37 Ludgate Hill
London, EC4M 7JN, United Kingdom
Phone: +44 203 887 6132 Email: info@ehlers-danlos.com Url: https://www.ehlers-danlos.com/eds-helpline/ https://www.ehlers-danlos.com/

Connect with other users with Ehlers-Danlos syndrome, dysfibronectinemic type on the RareGuru app

Do you have information about a disease, disorder, or syndrome? Want to suggest a symptom?
Please send suggestions to RareGuru!

The RareGuru disease database is regularly updated using data generously provided by GARD, the United States Genetic and Rare Disease Information Center.

People Using the App

Join the RareGuru Community

To connect, share, empower and heal today.

People Using the App