Ectodermal dysplasia, sensorineural hearing loss, and distinctive facial features

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Name: National Foundation for Ectodermal Dysplasias 6 Executive Drive Suite 2
Fairview Heights, IL, 62258-1360, United States Phone: +1-618-566-2020 Fax : +1-618-566-4718 Email: info@nfed.org Url: https://www.nfed.org/
Name: Canadian Ectodermal Dysplasia Syndromes Association CEDSA 124 Lochiel Street
Renfrew, Ontario K7V 1W7, Canada Phone: +1-613-432-9732 Email: meghan@ectodermaldysplasia.ca Url: http://www.ectodermaldysplasia.ca/
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