Patient Registry

Tyler's Hope for a Dystonia Cure

Tyler's Hope for a Dystonia Cure was established to further research and promote awareness for dystonia. The organization has established a Dystonia International Patient Registry (DIPR) for individuals who carry any of the dystonia gene deletions, especially the DYT1 gene deletion, and their family members.

Last updated on 04-27-20

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The RareGuru disease database is regularly updated using data generously provided by GARD, the United States Genetic and Rare Disease Information Center.

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