DYT-TOR1A

Patient Registry

Tyler's Hope for a Dystonia Cure

Tyler's Hope for a Dystonia Cure was established to further research and promote awareness for dystonia. The organization has established a Dystonia International Patient Registry (DIPR) for individuals who carry any of the dystonia gene deletions, especially the DYT1 gene deletion, and their family members.

Last updated on 04-27-20


Connect with other users with DYT-TOR1A on the RareGuru app

Do you have information about a disease, disorder, or syndrome? Want to suggest a symptom?
Please send suggestions to RareGuru!

The RareGuru disease database is regularly updated using data generously provided by GARD, the United States Genetic and Rare Disease Information Center.

People Using the App

Join the RareGuru Community

To connect, share, empower and heal today.

People Using the App