DICER1-related pleuropulmonary blastoma cancer predisposition syndrome

Clinical Research Resources

DICER 1 related PPB

The National Cancer Institute's (NCI) Clinical Genetics Branch (CGB) is currently conducting an observational study of individuals with pleuropulmonary blastoma (PPB) and other DICER1 -related tumors and their families entitled "Pleuopulmonary Blastoma DICER1 Syndrome Study". The purpose of this study is to help researchers define the tumor types and risks associated with the DICER1 syndrome. To learn more about this study, call 1-800-518-8474 or E-mail NCI.PPB@westat.com.

Last updated on 04-27-20

Connect with other users with DICER1-related pleuropulmonary blastoma cancer predisposition syndrome on the RareGuru app

Do you have information about a disease, disorder, or syndrome? Want to suggest a symptom?
Please send suggestions to RareGuru!

The RareGuru disease database is regularly updated using data generously provided by GARD, the United States Genetic and Rare Disease Information Center.

People Using the App

Join the RareGuru Community

To connect, share, empower and heal today.

People Using the App