Collagenous gastritis

How many people have collagenous gastritis?

Collagenous gastritis is a rare disorder first described in 1989. It has been reported that less than 50 cases of this condition have been published in the English language literature since it was first described.

Last updated on 05-01-20

What is the long-term outlook for people with collagenous gastritis?

The course and long-term outlook (prognosis) for people with collagenous gastritis (CG) is unclear. There has not yet been a comprehensive review of outcomes, and large variations in the course of the disease have been reported.

In the majority of adults, the condition seems to follow a chronic, intermittent course, with no significant mortality risk or severe progression. Diarrhea may resolve with or without treatment, although relapses may occur. In children, a less controllable course has been suspected. However, CG in children seems to follow a generally benign course, with limited long-term morbidity and no increased mortality reported to date. A few reports have documented that the abnormal collagen band in affected people persists (with or without medication) despite symptoms improving.

Last updated on 05-01-20

How might collagenous gastritis be treated?

Because collagenous gastritis is very rare and its cause is unknown, there is currently no established standard therapy for the condition. Various therapies have been attempted with limited success. These have included anti-secretary agents, steroids, iron supplementation, and hypoallergenic diets. Several other therapies have also been tested. A few affected people have shown improvement of symptoms, but no randomized, controlled trials have been performed. More studies are needed to establish a standard treatment strategy.

Last updated on 05-01-20

Name: The Digestive Disease National Coalition 507 Capitol Court, NE Suite 200
Washington, DC, 20002, United States
Phone: 202-544-7497 Fax : (202) 546-7105 Email: Url:
Name: American Gastroenterological Association 4930 Del Ray Avenue
Bethesda, MD, 20814, United States
Phone: 301–654–2055 Fax : 301–654–5920 Email: Url:

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The RareGuru disease database is regularly updated using data generously provided by GARD, the United States Genetic and Rare Disease Information Center.

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