Acrodysostosis

What is the long-term outlook for acrodysostosis?

The prognosis (long-term outlook) for individuals with acrodysostosis is not known. This is due to the rarity of the disorder and the lack of articles in the medical literature with long-term follow-up. The prognosis may differ depending on the underlying signs and symptoms present in each individual.

Last updated on 05-01-20

Name: European Skeletal Dysplasia Network Institute of Genetic Medicine Newcastle University
International Centre for Life Central Parkway New Castle upon Tyne
NE1 3BZ, United Kingdom
Email: info@esdn.org Url: http://www.esdn.org/eug/Home
Name: International Osteoporosis Foundation 9, rue Juste-Olivier CH-1260 Nyon
Switzerland
Phone: +41 22 994 0100 Fax : +41 22 994 0101 Email: info@iofbonehealth.org Url: http://www.iofbonehealth.org/
Name: Greenberg Center for Skeletal Dysplasias Johns Hopkins University Institute of Genetic Medicine
600 North Wolfe Street Blalock 1008
Baltimore, MD, 21287, United States
Phone: 410-614-0977 Email: deedee@jhmi.edu Url: http://www.hopkinsmedicine.org/institute-genetic-medicine/patient-care/genetics-clinic/about/greenberg-center-skeletal-dysplasia/
Name: European Skeletal Dysplasia Network Institute of Genetic Medicine Newcastle University
International Centre for Life Central Parkway New Castle upon Tyne
NE1 3BZ, United Kingdom
Email: info@esdn.org Url: http://www.esdn.org/eug/Home

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The RareGuru disease database is regularly updated using data generously provided by GARD, the United States Genetic and Rare Disease Information Center.

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