Chromosome 1p36 deletion syndrome

What is the life expectancy for individuals with chromosome 1p36 deletion syndrome?

The severity and nature of signs and symptoms of chromosome 1p36 deletion syndrome varies between affected individuals, so it is difficult to predict the long-term outlook for an individual child. Generally, affected individuals do survive well into adult life. There has been one study to date in which the course of 1p36 deletion syndrome was investigated, with a follow-up spanning 18 years. Although this study does not specifically address life expectancy, it does contain substantial information regarding the natural history of the condition. To view a free, full-text version of this study article, click here.

Last updated on 05-01-20

Where To Start

Unique-1p36 deletion syndrome

Unique is a source of information and support for families and individuals affected by rare chromosome disorders. Click on the link to view information about chromosome 1p36 deletion syndrome.

Last updated on 04-27-20

Name: Chromosome Disorder Outreach CDO PO Box 724
Boca Raton, FL, 33429 , United States
Phone: +1-561-395-4252 Email: Url:
Name: Unique – Rare Chromosome Disorder Support Group G1, The Stables Station Road West
Surrey RH8 9EE
United Kingdom
Phone: +44 (0)1883 723356 Email: Url:
Name: 1p36 Deletion Support & Awareness 906 NE Greenwood Ave.
Bend, OR, 97701, United States
Email: Url:

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