Blog | Page 2
When I first met Fear
Published by Ronna Kennedy
When her son was diagnosed with a rare combination of three autoimmune diseases after fighting a flu virus, this mother struggles to find peace with their new reality. Read about when she first realized the magnitude of her son’s illness and when Fear came to sit beside her. Read More
I’m a platinum card carrying germophobic social distancer. Welcome to the club
Published by Heather Barrow
Most of the things you have regularly been doing for the first time since the pandemic took hold in March, our family has practiced religiously since 2009, when we spent three months in the hospital. Read More
15 do’s and don'ts to help you sleep like a puppy during the pandemic
Published by Heather Barrow
Widespread insomnia is an unwelcome side effect of the Covid-19 pandemic and people with a rare disease or chronic illness are struggling more than ever to get much needed restorative sleep. I have slept better than ever during the past few months because I had a strong sleep foundation in place before coronavirus upended every aspect of my life except my sleep. Here is the list of my top 15 do’s and don'ts to help to help you sleep like a puppy during the pandemic. Read More
What People with Myotonic Dystrophy (and Their Families) Wish You Knew
Published by Angie Wiggans
One in a million: how two rare disease diagnoses transformed my life
Published by Kim Lackey
