Blog | Page 2
Find Your People
Published by Ronna Kennedy
When her son was diagnosed with a rare combination of three autoimmune diseases after fighting a flu virus, this mother dealt with a loneliness she had never felt before. Read about how she dealt with the realization, learned to share more of her life and find camaraderie with those around her. Read More
15 do’s and don'ts to help you sleep like a puppy during the pandemic
Published by Heather Barrow
Widespread insomnia is an unwelcome side effect of the Covid-19 pandemic and people with a rare disease or chronic illness are struggling more than ever to get much needed restorative sleep. I have slept better than ever during the past few months because I had a strong sleep foundation in place before coronavirus upended every aspect of my life except my sleep. Here is the list of my top 15 do’s and don'ts to help to help you sleep like a puppy during the pandemic. Read More
Crippling insomnia led to my ultra-rare diagnosis
Published by Heather Barrow
It started in 2017 when I ended up in the hospital with doctor-induced thyrotoxicosis. I have been on Synthroid since 2012 when I had a complete thyroidectomy due to a two-inch non-cancerous tumor on my thyroid, so regular blood tests and thyroid medication 'tweaks' were not uncommon. Read More
My long journey of learning everything I possibly could about Arthrogryposis
Published by Jennifer Fecowycz
What People with Myotonic Dystrophy (and Their Families) Wish You Knew
Published by Angie Wiggans
One in a million: how two rare disease diagnoses transformed my life
Published by Kim Lackey
